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More about DEBRA South Africa

The group name 'DEBRA' was first created overseas many years ago. It stands for Dystrophic EB Research Association. While we are not doing that type of work, many DEBRA groups now exist around the world to keep a level of consistency and to create a louder voice together. 

Our group is made up of patients, their friends and families and also medical professionals that work with EB patients. We have found that it is very helpful to connect and network with other organisations that are doing the same work. This helps us to learn from the best and to also no re-invent the wheel.

Our Affiliations

This is your Team section. It's a great place to introduce your team and talk about what makes it special, such as your culture and work philosophy. Don't be afraid to illustrate personality and character to help users connect with your team.

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